#DystoniaAroundTheWorld Challenge, All about Books, Dystonia Around the World Challenge, Writing journey, Writing process

Meet The Author: Karl Kiddy

As you are aware September is dystonia awareness month which makes having my next author to meet on my blog more exciting. Karl Kiddy is a writer and dystonia advocate who published Warriors of Dystonia which I’m proud to have my story so far in.

Meet The Author: Karl Kiddy

Photo of author Karl Kiddy
Author Karl Kiddy

A huge welcome, Karl. Please tell us a bit about yourself?

My name is Karl and I am a Welshman living in Belfast, with my two amazing daughters, my wife and a cat named Willow.   I have been an artist since I was a teenager and have dabbled in everything from Pyrography (burning pictures into pieces of wood), to photography, blogging, video editing and production, to writing, and dipping in and out of podcasting.  I’m a heavy metal music fan, as well as having a passion for horror movies and pretty much anything in that genre when it comes to comics and books too.  In my spare time, I as the whole reading and project thing, I am a gamer, and would play a lot of Xbox, I also love cooking and would do just about all of the cooking for myself and my ladies.  I have self-published five books, with Warriors of Dystonia being my most recent book and project.   Only one of my other books have been written under my name, with the rest of them, as well as many of my other projects, being done under a pseudonym due to the shamefully juvenile humour that I use throughout.  About 14 years ago my journey with Dystonia began.

Q. The book released is a compilation of the stories of people with dystonia, what made you decide to raise awareness to this little known condition?

It’s difficult to really narrow this down as I believe that Warriors of Dystonia had been bubbling under the surface for a long time.  Having dystonia myself and knowing that due to very little being known or understood about the disorder I had been plunged into a few scenarios where I struggled and I was left feeling humiliated.  A combination of this and having to say that I had Parkinson’s for people to consider my limitations made me think, “enough is enough.”  I want to be able to live in a world where we can say, “I have dystonia,” and for people outside of our community to have some sort of an idea of what it is that we are talking about.  I knew that there was no way I would be alone with wanting this and so I thought about using one of my favourite mediums, writing! 

So, my goal was to make a book where fellow people who have dystonia can see they are not alone and that they can handover to a person and say, “this is my world!”

Q How easy was it to get people together to share their experiences and bring it all together.

As a whole, it was hard work.  I wanted the book to feel like you were having a conversation with the person or perhaps you were sitting in on a chat that they were having.  No matter what anyone tells you, we are a nosy bunch us humans, and we are naturally very interested in the ins and outs of the lives of others.  I’d originally been thinking of ways of directing the content that was share with me, but I am glad I gave everyone free reign now!
Getting people to share their stories was the easy part.  I won’t go into too much, as I will probably use the same methods again, but it snowballed to a point where I had to close the original submission date three months earlier than I planned.  At that point, I had so many and at that point the book was four hundred pages!  The hard part was the admin behind the scenes.  I needed to set up a form which logged the names and details of everyone who contacted me either sharing their story or offering to share a story.  The editing of the book was difficult.  I had a file which was a mass of various length stories, terms, medications and treatments that I had never heard of and I then had to work out how I was going to compile it.  This was before I even started to then format the thing!

Q. You are an active campaigner to raise awareness of dystonia, how do you fit it in with other aspects of your life?

Anyone who knows me will know that when I have my heart set on something I will do it.  Whether it is work related or a new artistic venture I want to try, if I want to give it a go then nothing will stop me.  Then, once I have set my mind on it, I will invest everything in it.  For as long as I can remember, I have never really slept for long and so I work on Warriors of Dystonia in the early hours of the morning.  It would also be these early hours that I would squeeze in some of my other passions too.  By the time my girls get up for school I have probably already got a few hours of my actually job done, an hour on the Warriors of Dystonia or perhaps I have been out and taken photographs of the lovely sunrise.  As I start my job so early, I often have a bit of time in the afternoons to work on my projects too.  Then there’s the weekends, where I will still be getting up and out of bed at some ungodly hour of the morning!

Q. Lots of stories must have been overwhelming to hear, do you have a support network around you?

Yes, absolutely.  I have to be honest, when I knuckled down and began to really read the stories back-to-back I was struggling at times.  Reading the book is different and there’s a bit of a barrier or distance between the reader and the storyteller. I was interacting directly with every single person in the book.  Many of which we were in back-and-forth correspondence.  Going through the story and knowing that person and talking with them was a very different experience.  However, with that being said, it also made me so proud to be able to do this.  There were a few people who I spoke with who have dystonia so bad that this book was their first opportunity to tell the world what it was that they were battling and dealing with every single day.  The sheer determination was inspiring.

I’ve always been very open with my feelings, so have no problems of just saying, “I am having a crappy day.”  You know, that feeling when you wake in the morning and you think to yourself, “I don’t know why, but it’s going to be one of those days.”  I just warn everyone.  That way, it isn’t a great shock to anyone if I am not my self.

I have a great support network in my wife and daughters.  Just having a cuddle from them or listening to their stories about their little lives is priceless.  I love going for walks, so I would often go for a long walk with my wife and talk at her about whatever it is that is going around in my head at that point.     

Q. Have you found this project has impacted your life more than you expected?

Yes, definitely.  I have made so many new friends and my faith in humanity has been restored thanks to the dystonia community being full to the brim with some of the most lovely and sincere people I have ever had the pleasure of interacting with.  Absolute warriors and so inspirational!  From the very start of working on the book, I was exposed to a whole world of forms of dystonia that I had not only not heard of, but wouldn’t have ever stumbled across if it hadn’t been for the work I was doing.  It showed me that dystonia awareness is not only vitally important outside of the dystonia community, but within it too.   Finally, I guess what I almost selfishly planned to be a one-and-done in regard to this project has lead to me wanting to champion and awareness as much as I can whenever I can.  Warriors of Dystonia continues to grow, and I am proud to have started it.

Q. You are also a self-published author, can you say a bit about this or is it top secret?

Being a complete control freak means that the self-publish route suits me just perfectly.  Whenever I have written a book, the formatting, layout, cover art and pretty much every other aesthetic as well as the writing must look exactly how I want.  There’s a method and plan behind my madness!  The downside is that you discover that writing a book is easy, it’s the getting it out there into the public eye that is difficult.  Although it would be fantastic to see Warriors of Dystonia in books shops, the word Dystonia isn’t something that you just stumble across, so I would expect that most people who are looking for a book about dystonia will stumble across my book when scouring the internet. 

Anyone going down the self published-route needs to be prepared to have a plan of how they will release their masterpiece onto the world, and this needs to begin before the date you plan of unleashing it.  You need to drum up interest, use all of the tools the internet gives you, put yourself out there so that people get to know you and then talk to your audience.  Warriors of Dystonia the book didn’t exist in January 2020, but by the time it was released, everyone who had been following the project knew exactly what it was that I was putting together, when it was coming out and knew a lot about me.  Once the book is released, you must keep up that momentum.  This is where I struggle, because I keep thinking that any time that I am investing in marketing could be time spent writing or working on a new project!

Q. What is your next project?

I have been writing under a pseudonym for many years and my plan is to continue something I started many years ago under that alias.  When it comes to writing, my passion is in surreal, off-the-wall comedy and horror.  As well as that, I have drafted a plan for a podcast that I will be hopefully starting this year, it will be another one-man-show, and will be a mix of reviews, random stories of the week and probably a lot of swearing.

These are regular questions I ask everyone, but you may want to skip some if you don’t want to discuss your other books.

Q. What is your favourite book? 

The Pilo Family Circus and the Skulduggery Pleasant Series.  Pilo Family Circus is one of the most unique horror stories I have ever read.

Q. Who is your favourite author?

Derek Landy, bit that’s because I absolutely love the Skulduggery books.

Q. Is your writing influenced by the books you have read? 

I would say not really.  My writing is a messy amalgamation of influence from films, comics, music, with a splash of books.  One of my biggest influences is life and the characters I meet along the way. 

Q. Where is your favourite place to read or write?

I enjoy reading in my living room with movie soundtracks or instrumental music playing in the background.  If I have music on that has lyrics my brain tends to start drawing me to the music.

Q. When did you begin writing and how did being published come about? 

I have been writing ever since I was a young teen, but I really got into it after I wrote a controversial short story about my secondary school, a killer bear and the carnage that ensued when that bear got to the school.  It was over-the-top, completely inappropriate comedy mixed with horror; a printout of the story started to circulate around my school and I became a legend!  I absolutely loved hearing about how funny people found the story.  Years later, at university, I wrote a series of stories about my life and once again I found it fantastic to see people reading my work in the workshops and laughing.  In 2006 I completed Nanowrimo and at the end of it I put the transcript into a book.  Seeing an actual physical copy of the story in this way made me want to put more out!  I then created my first writing alter ego and haven’t looked back.

Q. If you have a genre you write, how did you begin writing in this style?

I love writing comedy that is mixed with horror, occult and it always tends to be quite surreal and totally unpredictable.  Some of my inspirations would be the unpredictable comedy of Reeves and Mortimer, the surrealness of Monty Python and the crude, horror-tinged shock tactics of League of Gentlemen.  I also love to listen to paranormal and conspiracy podcasts too as they offer a writer such a diverse pallet of characters and stories!

Thank you so much for joining me for a natter and all you do for the dystonia community. More information on Karl’s book follows.

Warriors of Dystonia by Karl Kiddy

Book Cover for Warriors of Dystonia by Karl Kiddy

Blurb

“Dystonia is the third most common movement disorder behind essential tremor and Parkinson’s disease, yet hardly anyone has heard of it. Little is known about the condition or what causes it, but what is certain is that it can affect anyone at any age, at any time, any part of the body and has no cure.  Whether directly having dystonia or caring for someone who has it, Warriors of Dystonia shares the candid, emotional journeys and experiences of people from all over the world whose lives are affected by this chronic neurological condition.”

Warriors of dystonia
Website – https://warriorsofdystonia.wordpress.com/
Facebook – https://www.facebook.com/WarriorsOfDystonia/
Instagram – https://www.instagram.com/warriors.of.dystonia/
YouTube – https://www.youtube.com/channel/UCEFh6BtXWlE8BYM_T7AC6cw

Purchase book: https://warriorsofdystonia.wordpress.com/

More information about dystonia: https://www.dystonia.org.uk/

Thank you again Karl for joining me and good luck in your next project.

An update on my challenge for Dystonia Around the World, migraines and dystonia attacks have meant I’m slower than normal but I’m now on book 5 of my readathon to raise awareness and fundraise for dystonia UK. I will be updating my page here

Happy reading and writing!

Love

#DystoniaAroundTheWorld Challenge, Dystonia Around the World Challenge, Writing journey, Writing process

Success: Dystonia Around the World Update

This is a belated update on the Dystonia Around the World challenge. With a final push we did it! As a team we managed to walk around the world for dystonia by clocking up 25,994 miles and raising £ 14,257 for Dystonia UK. As a small charity every little counts and I am so pleased to have been involved.

Infographic showing 25994  miles logged and £14,257 raised for Dystonia UK
The sea crashing against cliff at Boscastle, Cornwall
My Destination: Boscastle

I did not manage to write 1000 miles as planned but limped in at 630. This would have got me to my ultimate destination, The Witchcraft Museum at Boscastle, via Bridlington, Haworth, and the atmospheric Mother Shipton’s cave but I would have had to hitchhike back.

A female hand hitchhiking on a deserted road

Things I have learned during this challenge

  • 2020 is consistent in derailing any plans it knows about including this one hence why my personal challenge was not completed in the time frame.
  • I am slow at writing and even slower at editing. Rather than an extensive range of flash fiction posted here, my phone and notebook is dotted with unedited and half finished short stories. They will be edited one day so you can read them despite the strong urge to hide them away.
  • Zoom is my friend and allows me to meet other people. The last couple of months it has allowed me to connect with other writers and those with dystonia including those at Dystonia UK’s first digital conference. I would always shy away from video calls but now I have embraced them.
  • I never remember how much the impact the colder seasons have on my dystonia ; I need to include and adjust goals accordingly.
  • Dopamine plays an important role in achieving goals, and what I could achieve last year is not the same as it is now I am on reduced medication. But then, as my headmistress always used to quote “Shoot for the moon. Even if you miss, you’ll land among the stars.”* 630 exceeded my initial expectations as did my final total raised.
  • I have more people believing in me and writing than I imagined.

Thank you everyone who supported me.

Happy writing and stay safe

Love

  • I am unsure who said that originally. Google has answers from Oscar Wilde, Norman Vincent Peale, author of The Power of Positive Thinking to many others. If you know let me know.
All about Books, Guest post, Writing journey, Writing process

Guest Post: WORLD BUILDING with Guardian: Recruit author, Catherine Rull

Catherine Rull

Today I am excited to introduce Catherine Rull, the Australian author of paranormal romance, Guardian: Recruit as a guest on my blog. Her book is about guardian angels that watch over a psychiatric facility in London. She’s here for a quick chat to tell us more about world-building, and hitting those word counts.

Hi, Kate. Thanks for having me.

Hello. Shall we get started? Okay, so first up: how did you come up with the world for Guardian: Recruit?

Well, it actually came to me in a dream while I was pregnant in 2008. In my dream, I was driving and saw some small things flying around. When I got out of my car, I realised they were pixies. One of them was someone I knew as a child, but he’d died. And he told me, children’s souls got to grow up but as pixies. When I woke up, I wrote down the idea. But of course pixies aren’t really sexy so I went with angels.

Good choice. Was there anything else from your dream?

No. That was it. The rest, I had to figure out myself.

Well, the world in Guardian: Recruit’s quite fleshed out. Do you have any advice for other paranormal writers?

I think there are probably five things you’ll need to do to build your own world.

  1. Base it on something real. Any novel requires a certain level of world building, regardless of the genre. I think the more you can ground your world in reality, the more believable it is. The setting for Guardian: Recruit is similar to the hospital school where I worked in London. Of course, it wasn’t creepy there at all but that’s the beauty of creating your own world. You add your imagination to the mix and hopefully create something vivid and realistic for your readers.
  2. Research. Researching different aspects of your story (eg. your character’s job; angels from different cultures) often leads to more ideas for your books.
  3. The new character. Another important tool in world building is to have a character who is new to the world. This allows you to explain some of the rules of the world to the reader in a more organic way. You see this all the time, including in Harry Potter. As someone who didn’t know he was a wizard, Harry had to be taught the way the wizarding world works and the reader learns about it with him.
  4. Layering. If you have the time, I suggest editing the book with some breaks in between. This allows you to notice things you may not have realised before, or come up with new ideas to add to your world. This gives the book its many layers.
  5. Series Bible. It’s important to keep track of the rules you’ve set for your world. I keep a “Series Bible” for all my books (not just the paranormal ones) to ensure continuity.

Thanks, Catherine. That’s a handy list. Did it take you long to write Guardian: Recruit?

I wrote about five pages in 2008. Then, in 2014, I picked it up again and set myself 800-words minimum a day until it was finished. And it wasn’t always easy. Sometimes, I would fall asleep at my laptop trying to hit my word count for the day and I would wake up to find a row of “bbbbbbbbbbbbbbbbbbbb” where my hand rested while I was sleeping. But then I’d wake myself up and keep going till I reached that word count. There were times when I felt like what I was writing was absolutely terrible, but when it was time to edit, those parts were never as bad as I thought. Sometimes, they were actually quite good! Either way, it’s better to edit bad writing than to have a blank page.

I completed the first draft of Guardian: Recruit in about 8 weeks, and then I edited it lots of times. I’m a “pantser”—that means I like to write “by the seat of my pants”. I find that this gives me space to surprise myself. I personally find plotting very restrictive. “Pantsing” allows the characters the freedom to get themselves into trouble, instead of me plotting their challenges 😊

Anyway, after writing the first draft, I print out my manuscripts to edit on paper, input the changes to the digital copy, edit on the laptop and print again. I usually edit books between five to ten times in this way. But I editing is all part of making a tight story and a clean manuscript. In 2015, Guardian: Recruit was shortlisted in the UK’s Mslexia Women’s Novel Competition.

That’s great. Congratulations!

Thanks.

So, do you already have other books lined up after Guardian: Recruit?

Yes. I’ve already written Book 2 of the Guardian Series and have the basic premise for the third book. I think the sequel will come out some time in 2021. I am currently working on other projects as well—some sequels to the chick lit and rom com that have already come out this year: The Fat Chicks’ Club Series and my Swim Bike Run Series.

You sound very busy. Do you have a set routine or favourite drink while you’re writing?

Not so much a routine. Like most writers, I have a day job. Plus, I have young children so I fit my writing around my other responsibilities. However, before the lockdowns, I sometimes used to go to my local library to get away from the distractions at home. That was usually when I needed to write or edit something in time for a competition or a submission to an agent or editor.

As for a favourite drink. I’m a big kid, so I like cold drinks like bubble tea and frozen Cokes. I like to keep it fun. Writing brings me so much joy, and I hope my readers feel that in my stories. You know, even though Guardian: Recruit has a seemingly sombre premise, you’ll find there’s a lot of humour in it as well. I don’t think I’d like to write anything too sad or depressing—I like my characters to have a sense of humour. It’s important to be able to laugh at life.

That’s good advice. Well, all the best with all those projects!

Guardian: Recruit is the first book in the Guardian Series. It’s available in ebook and paperback from Amazon, Book Depository and Barnes & Noble.

Social media contacts

website: www.catherinerull.com

Facebook: Catherine Rull (novelist): https://www.facebook.com/CatherineRullnovelist

Twitter: @catherinerull13

Instagram: @catherine.rull 

Thanks again Catherine, and I can’t wait to read your book. We are heading into November and NaNoWriMo so let me know if you are joining in and have any other word building tips.

Happy writing and stay safe!

Love